Caregiver support groups in Washington County
The free caregiver programs in the East Metro are real, they are nearby, and almost nobody tells families they exist.
How families find these programs
Most people find these programs months after they would have helped. It usually comes up in passing, from a hospital social worker on the way out the door or a neighbor at the mailbox. If you are only coming across this now, that is the normal way people find it.
Caregiver support in Minnesota runs on one federal program, gets administered by a regional agency, and is delivered by half a dozen different nonprofits, each with its own name and its own website. None of them advertise, and none of them list the others. That is how the system is set up. The programs below serve Washington County and the eastern metro.
Who these programs are for
There is one federal program behind most of this. The federal Administration for Community Living, which oversees the National Family Caregiver Support Program, says it funds five kinds of service: someone to tell you what exists, help getting signed up for it, counseling and support groups and caregiver training, respite care, and a small amount for other things families need. The program was created under Section 371 of the Older Americans Act. The same agency says eligible caregivers include family members caring for someone 60 or older, and anyone caring for a person of any age with Alzheimer's disease or a related disorder.
Say your mother is 84 and lives in Oakdale, and you drive over three evenings a week to sort pills and do laundry. Those rules cover a family member caring for a parent who is 60 or older, with or without a dementia diagnosis. The agency makes the actual eligibility call, so the only way to know for certain is to ask.
The Minnesota Department of Health reports that an estimated 171,000 family caregivers in Minnesota supported people with dementia, providing 156 million hours of care.
Support groups in Washington County
FamilyMeans, based in Stillwater, runs four caregiver support groups serving Washington County:
- Weekday mornings, online: 10:00 to 11:00, first and third Wednesdays.
- Weekday evenings, online: 5:30 to 6:30, third Wednesday.
- Weekday afternoons, in person: 1:00 to 2:30, second and fourth Tuesdays.
- Cottage Grove, in person: 1:30 to 2:30, second Thursday of the month.
FamilyMeans asks you to register ahead for all four, so plan on one short call or email before you show up. Times and dates change, so confirm when you register, and if none of them fit around your job, say so when you call.
The Alzheimer's Association Minnesota-North Dakota chapter runs its own groups across both states. The chapter says its groups are facilitated by a trained Alzheimer's Association support group facilitator and are free of charge and open to the general public. Several meet virtually, including one for adult children caring for a parent and one for caregivers of someone with younger-onset dementia.
If sitting in a circle and discussing your feelings sounds like the last thing you want after the week you have had, the online morning group is the easiest one to try. You can go once and not come back. Ask about cameras when you register.
Caregiver consultants and family meetings
The Metropolitan Area Agency on Aging is the office that holds the federal caregiver money for this part of the state, Washington County included. It describes itself as the designated area agency on aging for the Twin Cities metro area, a role authorized in the federal Older Americans Act and assigned by the Minnesota Board on Aging, and it says it administers the Older Americans Act funds for caregiver support and respite care across the seven-county metro.
Its own list of caregiver services includes consultants and coaches who work with one family member one-to-one, facilitated family meetings, support groups, and caregiver education on managing stress and dealing with health systems. It also lists adult respite care running from a couple of hours up to a short-term stay.
Families often do not know the facilitated family meeting exists. Someone from the agency runs the meeting, keeps it on the question of who does what, and takes some of the heat you would otherwise take by yourself. If your brother in Arizona has opinions about your mother's care but has not been at the house on a weeknight, having a facilitator in the room helps. We have written separately about what to do when caregiving falls to one sibling, including how to handle these conversations with a third person in the room. If you are also holding down a job, our notes on working full time while caring for a parent go further than this page does.
Groups for the person you are caring for
Part of what wears a family down is that the person with dementia has nowhere to go during the day, so you cover those hours yourself.
FamilyMeans runs memory cafés in Woodbury, Lake Elmo, and Hugo: in-person gatherings for people living with memory loss together with the people who care for them. It also runs a group called Journey Together for people living with dementia, and notes that respite companionship and supervision may be available during group times.
Your mother spends a morning with other people, and for those couple of hours someone else is responsible for her.
What the county handles
Washington County's aging and disability services sit on a separate track from everything above. People confuse the two constantly, partly because the names are so similar.
The caregiver programs in this article are for the family member. They provide information, groups, coaching, and a few hours of relief. The county is where a MnCHOICES assessment happens, and that assessment is the one that decides whether public programs will pay toward your mother's care. If you are worn out, start with the support groups and the caregiver consultant. Call the county if the problem is paying for the hours she needs. Our page on the MnCHOICES assessment covers what that appointment involves. If you cannot tell which of the two you need, that is a fine thing to say out loud on the first call.
Minnesota Aging Pathways
Minnesota Aging Pathways is free, statewide, and run by the Minnesota Board on Aging together with Minnesota's area agencies on aging. It used to be called the Senior LinkAge Line, which is the name you may have on a sticky note from the clinic. The statewide number is 800-333-2433, and the Board on Aging lists weekday hours of 8:00 a.m. to 4:30 p.m. The Metropolitan Area Agency on Aging names it as the first call for a caregiver looking for information or assistance.
The people answering keep track of the programs in this article and of the ones that have opened since. We wrote more about what Minnesota Aging Pathways actually does for East Metro families if you want to know what to expect before you call.
If you want one place to start, any one of these is enough:
- Call Minnesota Aging Pathways, say you are caring for a parent in Washington County, and ask what is available near you.
- Pick one support group from the list above and register for its next date.
- If your family is the hardest part, ask the metro agency about a facilitated family meeting.
You do not have to decide about long-term care this month, and the rest of the list can wait.
Where paid care fits
Free programs cover information, company, and a few hours here and there. A ninety-minute morning routine, or evenings when your mother cannot safely get to the bathroom alone, needs more hours than those programs fund. At that point a family is looking at paid care. Before calling anyone, write down which hours of the week actually go wrong; a rough list is enough. Our notes on what actually relieves caregiver burnout cover what to do while you are deciding.
Abloom Senior Living provides scheduled in-home care in Woodbury and the East Metro, dementia care at home included, under a comprehensive home care license from the Minnesota Department of Health. It is paid for privately or through long-term care insurance. We do not offer respite care, so if respite is what you need, Minnesota Aging Pathways and the county are the right calls. And if what your family needs is something we are not the right provider for, we will say so and point you toward someone who is.
If paid hours are where you are heading, you can request a visit at your mother's home or come see the Woodbury house. Nothing is owed either way, and plenty of families use that conversation to work out that they do not need paid care yet.
This article is general information from a care provider in Woodbury, Minnesota. It is not legal, financial, or medical advice. Program details, meeting times, and eligibility rules change, so confirm specifics with each organization before you count on them.
Frequently asked questions
Are caregiver support groups in Washington County free?
The Alzheimer's Association Minnesota-North Dakota chapter states that its support groups are free of charge and open to the general public. FamilyMeans requires advance registration for its four caregiver groups and does not publish a cost for them, so ask when you register. Minnesota Aging Pathways, the statewide information line run by the Minnesota Board on Aging, is free.
Do I qualify for caregiver support if my parent has not been diagnosed with dementia?
The federal Administration for Community Living says the National Family Caregiver Support Program covers family members caring for someone age 60 or older, and separately covers anyone caring for a person of any age with Alzheimer's disease or a related disorder. A dementia diagnosis is one way in and is not required. The agency administering the funds makes the eligibility decision, so confirm your own situation with Minnesota Aging Pathways.
What is the difference between a caregiver consultant and a support group?
A support group puts you with other people in your situation, in a room or on a video call. A caregiver consultant or coach from the Metropolitan Area Agency on Aging works with you one-to-one on your own household: what to do about the shower, how to divide tasks among siblings, what to ask at the clinic. Families often use both.
Does Washington County provide respite care?
Respite care is one of the five service categories the federal Administration for Community Living funds under the Older Americans Act, and the Metropolitan Area Agency on Aging lists adult respite care among its own services, from a couple of hours to a short-term stay. Minnesota Aging Pathways can tell you which providers in Washington County have respite available and how it is paid for.
Where do I start if I only have time for one phone call?
Minnesota Aging Pathways at 800-333-2433. It is free, it is run by the Minnesota Board on Aging with the area agencies on aging, and the Metropolitan Area Agency on Aging points caregivers there first.
Related reading
- Free help for East Metro families arranging care
- Caregiver burnout, and what actually changes it
- When caregiving falls to one sibling
Sources
- National Family Caregiver Support Program, Administration for Community Living
- Caregivers of People with Dementia, Minnesota Department of Health
- Caregiver Support Groups, FamilyMeans
- Caregiver Support Groups, Alzheimer's Association Minnesota-North Dakota
- Family Caregivers, Metropolitan Area Agency on Aging
- Area Agency on Aging, Metropolitan Area Agency on Aging
- Minnesota Aging Pathways, Minnesota Board on Aging
- Minnesota Aging Pathways